The Cure SURF1 Foundation was founded in 2018 by a group of families who are determined to fight for our children’s lives. Each of us has a young child diagnosed with SURF1 Leigh syndrome. Each of us has been told by doctors that there is no treatment, no cure, and no hope. And each of us has refused to accept this as a final answer.
Our mission is to advance research efforts related to SURF1 Leigh syndrome with the ultimate goal of finding a cure. Our primary focus is to develop a gene therapy treatment to rescue the single defective gene, called SURF1, which is the source of this disease. A successful outcome will mean not only hope for our own children, but also life-saving treatments for future generations impacted by this disease.