About us

The Cure SURF1 Foundation was founded in 2018 by a group of families who are determined to fight for our children’s lives.  Each of us has a young child diagnosed with SURF1 Leigh syndrome.  Each of us has been told by doctors that there is no treatment, no cure, and no hope.  And each of us has refused to accept this as a final answer. 

Our mission is to advance research efforts related to SURF1 Leigh syndrome with the ultimate goal of finding a cure.  Our primary focus is to develop a gene therapy treatment to rescue the single defective gene, called SURF1, which is the source of this disease.  A successful outcome will mean not only hope for our own children, but also life-saving treatments for future generations impacted by this disease. 

Help our kids today

Our Foundation’s effort to find a cure for SURF1 Leigh syndrome is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease.  100% of your donations are tax deductible and will go directly to research dedicated to SURF1 Leigh syndrome.  The Cure SURF1 Foundation is a 501(c)(3) nonprofit organization.  We thank you for your support!

our partners


The Cure SURF1 Foundation is dedicated to advancing education and research for SURF1 Leigh syndrome.  Our mission is to empower families to come together with a common goal of finding treatments, and ultimately a cure, for this devastating disease.

501(c)(3) EIN: 82-4665767 

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© 2018 by Cure Surf1 Foundation