fighting for a cure
Please join us on our quest to find a cure for SURF1 Leigh syndrome, a rare, terminal neurodegenerative disease. This devastating disease primarily affects infants and young children. We need you to help us turn hope into action!
FIGHT · RESEARCH · HOPE · CURE
About surf1 Leigh syndrome
Leigh syndrome associated with mutations in the SURF1 gene severely disables affected children. At the basic mechanism level, the brains of children lacking this gene cannot generate adequate energy for proper functioning of the brain. Unfortunately, there is neither cure nor treatment for the disease. In the present day and age, doctors can diagnose this easily, know its precise cause (missing SURF1 function), but have nothing to offer these children and families.
The Cure SURF1 Foundation is dedicated to advancing education and research for SURF1 Leigh syndrome. Our mission is to empower families to come together with a common goal of finding treatments, and ultimately a cure, for this devastating disease.
kids battling surf1
Our Foundation’s effort to find a cure for SURF1 Leigh syndrome is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease. 100% of your donations are tax deductible and will go directly to research dedicated to SURF1 Leigh syndrome. Cure SURF1 Foundation is a 501(c)(3) nonprofit organization. We thank you for your support!